Truth? Where are you?

I, like every parent want the best for my children. When they are sick, I want them well. When they are feeling good I want them to stay that way....for ever. My son, since birth has perhaps not ever felt "good".
     Since we can not climb inside of another person and test drive their body, we can only take their word for it on how they feel. Well what do you do when your point of reference is all out of wack? If I ask, "How are you feeling?" and he says "fine"
I am forced to accept that. His "fine" however maybe absolute hell.
So what do I do? How do I fix this? I have recently aquired all of his medical records and placed them in a binder that I now carry with me to all his doctors appointments. This makes me look like a complete nut case. I realize this. The binder weighs more than my son. It almost weighs more than me. I have gone through his records like a CSI detective and have found clues as to where things may have gone a-miss. But seriously, what do I do with this information? Our well meaning pediatrician wants to run a bunch of tests that I am learning from outside sources are really nothing more than autistic witchcraft. There are nay-sayers, there are parents who swear their child is "better", there are doctors who won't listen to me or even look at me when I am talking to them, then there is my son, who keeps loosing weight and wont eat.

    Trying the GFCF (Gluten free Casein Free) diet seemed to help....but we also stopped one of his medications that, guess what....had the side effect of headache and stomach ache... sigh. Who do I listen to? Who has the truth? With all these parents desperate to fix their children I can see why there is a boom in the autistic research field. We as parents have to be so careful. I don't want to cure my son's autism necessarily, I want to make him comfortable. I want his joints not to hurt. I want his stomach to stop bothering him, and most of all I want him to stop having headaches.....(oh yeah that stopped when I took him off that medicine....good thing I am a great doctor....when do I get to just be his mom?)
I have until Monday to decide about the testing....our insurance will cover most of it, but then what? The results will mean what? Food allergy testing is debatable at best. Every time he has been tested he comes back allergic to a new food....why? Because there is no "gold standard" in IGG or IGE testing....it is all just guess work.....great.  That should not be acceptable. Perhaps that is why I was told all those years ago to just keep giving him those foods he showed up allergic to....what is the point then of the tests?
This mom is getting very frustrated. I want to find the truth. I want to make my kid better.